Potentially nothing more. Once treatment stood and there is nothing more then that is the end. I think though it’s a case of having a second opinion for your own peace of mind. I can only begin to imagine thoughts going through her head. You know the reality of living with stage four but let’s face it, when that reality is knocking on your door you’d want to try anything.So, realistically what options are there left with her hospital, seeing as they've cancelled the chemo? I saw IV radiation mentioned, but what will that do? And what treatment would she get through the Marsden or one the other private hospitals?
If they have told her there's nothing else for her to have they will refer her for palliative care at her local hospice! She can get a 2nd opinion probably privately but it will cost her and I know this sounds bad but is it worth it? She could spend weeks trying to raise the money for some different treatment and it not work..... which in that time she could have spent with family...... it's very very hard and it's not anything you want to think about but when your told it's incurable you have to get to reach an understanding early on in that diagnosis that it will happen in day!So, realistically what options are there left with her hospital, seeing as they've cancelled the chemo? I saw IV radiation mentioned, but what will that do? And what treatment would she get through the Marsden or one the other private hospitals?
I often think of Monique and how awful her ending was. Looking for answers tight up until the end and look, nobody can say what you would do in that situation u til you are in it, but it was heartbreaking. I can’t help but think being in a hospice with proper pain medication would have been preferable to being in that hospital. Her GFM was running right up to the end, looking for private ( often pointless treatments) I wonder what happens to that money? Was it donated on to someone else in need?If they have told her there's nothing else for her to have they will refer her for palliative care at her local hospice! She can get a 2nd opinion probably privately but it will cost her and I know this sounds bad but is it worth it? She could spend weeks trying to raise the money for some different treatment and it not work..... which in that time she could have spent with family...... it's very very hard and it's not anything you want to think about but when your told it's incurable you have to get to reach an understanding early on in that diagnosis that it will happen in day!
I was thinking of Monique just the other day too, I agree re the hospice. I think she and her family felt very let down by the hospital (I think at one point a family friend who was a Doctor looked at her notes or something, and the hospital had missed something?) I don’t remember seeing any updates on the money after she passed either.I often think of Monique and how awful her ending was. Looking for answers tight up until the end and look, nobody can say what you would do in that situation u til you are in it, but it was heartbreaking. I can’t help but think being in a hospice with proper pain medication would have been preferable to being in that hospital. Her GFM was running right up to the end, looking for private ( often pointless treatments) I wonder what happens to that money? Was it donated on to someone else in need?
Before chemo starts bloods are taken for various reasons and chemo doesn't commence until results are back. It's likely they intended to give her chemo but the bloods showed something that warranted then stopping. Piss poor that the oncologist wasn't the one to deliver the news and an explanation thoughLizzi seems like quite a straight forward kind of woman, I think she would rather know the truth and what she’s up against (even though she probably won’t feel that now). It’s just so sad, she has such a young family. And she said she loved the Nurse who told her so it would have been good for her to be there when the Oncologist told her. It’s hard to get my head around them letting her go for chemo, sit down thinking she’s going to start treatment…and then the Oncologist phones for someone to tell her it’s not working! Is that where the NHS is, not even giving someone the dignity of heartbreaking news face to face?
If she wasn’t suitable for the Marsden then the Oncologist should have told her, not say they were going to do it and then not bother. And still waiting for the MRI results from 3 weeks ago, I would have been thinking ‘no news is good news’ but that’s unlikely to be true so they’re just taking that long even if it’s urgent. Awful
It was maybe possibly an acute oncology nurse, CNS or SACT nurse who delivered the news which is absolutely fine and normal. Oncologists have liv es too and aren’t always available.Before chemo starts bloods are taken for various reasons and chemo doesn't commence until results are back. It's likely they intended to give her chemo but the bloods showed something that warranted then stopping. Piss poor that the oncologist wasn't the one to deliver the news and an explanation though
Yes I agree and actually, from working with drs I think sometimes a nurse is less clinical in delivering that kind of news. Awful as it sounds we only get one side of the story so we don't know who was where and what was saidIt was maybe possibly an acute oncology nurse, CNS or SACT nurse who delivered the news which is absolutely fine and normal. Oncologists have liv es too and aren’t always available.
She posted a couple of stories of the family out in the sun (that’s the ones I’ve seen, there may be others that I missed)Has there been any further updates from Lizzie? I hope she's managed to have a lovely weekend enjoying the sun with her family.
I’ve shared on this thread before that my dad’s inability to face his terminal cancer meant his death was pretty awful. He refused to discuss it so what should have been a gentle slip away either at home or in a hospice, was on a full hospital ward with limited pain relief because hospices have better rules for it. I don’t judge him for that, as you say, who could know how they’d react in such circumstance? But at some points there just isn’t anything else and coming to a place of acceptance about it could mean plans being in place etc.I often think of Monique and how awful her ending was. Looking for answers tight up until the end and look, nobody can say what you would do in that situation u til you are in it, but it was heartbreaking. I can’t help but think being in a hospice with proper pain medication would have been preferable to being in that hospital. Her GFM was running right up to the end, looking for private ( often pointless treatments) I wonder what happens to that money? Was it donated on to someone else in need?