Tinnitus

[ThirdWorldGlam]

I've got this since Covid, thankfully is not as bad as others are commenting but I had all sorts of ear investigations and they found nothing, which is good and ... well, depressing, as there's no clue on what causes it. The specialist was lovely but honest that the theories and solutions for tinnitus are poor yet and recommended some meditations.

 

[Bumblebee999]

Hi, I just get the pulsatile tinnitus 24/7, I've seen 3 ent consultants and had MRI and ultrasound, but both clear, which I expected. Have you got the heart beat in your ear? If so you need a vascular doctor or neurologist if you can get appointment, I've gone back to my doctors and told them about a fainting episode I had so my doc is looking into a vascular or neurologist but that's if I'm lucky, I'm in UK, I'm hoping for a ct angiogram to investigate my pulsatile tinnitus, I also have a lump under my ear which the ent cant find an answer for ( they weren't very good, one was awful, told me it was my nerves!) there's a Facebook page called Pulsatile Tinnitus Sufferers, they have info in the threads, wishing you luck

 

[Snippysnips]

In cause it's any use to anyone, I eventually went to the audiologist for mine, they mentioned tinnitus can sometimes be caused by fluid behind the ear drum, as someone who usually gets water in my ears in the showers I did not know this, this wasn't the case for me but thought it might be helpful for others to know that if you are always getting water in your ear it may lead to tinnitus

 

[TheDragonWithAFlagon]

Feel your pain MASSIVELY! I was diagnosed with cookie bite hearing loss last year and it causes a huge dip in mid-frequency sounds. I work in quite a noisy environment and was struggling for ages to decipher conversations over the racket! It’s so frustrating and then people just talk to you like you’re stupid Apparently I was born with it so I’ve just been dealing with it for 34 years unaware

Hearing aids have completely changed my life! It doesn’t completely fix it as it’s such a difficult type of hearing loss to tune the aids to, but it has made my life so much more manageable! Let us know how you get on It’s reassuring to see someone else with the same kind of hearing loss as myself!

I'm going to start clipping my hair back all the time and, if I can, getting some ridiculously bright stuff to put around the tube (hoping the NHS allows for choosing a brightly coloured HA as well) on the offchance that people might see it and not start up additional conversations across me. I'm not counting on it, but maybe it'll reduce the number of occurrences a little.

 

[theSJfox]

Does anyone get a deep humming sound in one ear only?

It’s so bad tonight and changing pitch, I cannot sleep and I’ve basically convinced myself I have a tumor at this point

 

[Snippysnips]

Does anyone get a deep humming sound in one ear only?

It’s so bad tonight and changing pitch, I cannot sleep and I’ve basically convinced myself I have a tumor at this point

Yes, been having this now for a few months, seems to be at night it's at its worst, I've tried white noise at night but being used to silence at night it's just keeping me up so I've had to try learn to cope

The very first time I got it I was up all night searching the house for the noise

 

[leon19]

I have a question does anyone else get weird feelings in their head sometimes with their tinnitus like buzzing, vibrating like feelings. Sometimes bad headaches or just headaches in random spots and when this happens tinnitus is always louder. Is this normal? Because it always worrys me something else is going on

 

[aidil]

I've got it on one side - the other ear is 100% perfect, but the one with the hssssssssssssssssssssssssssss has a huge dropoff from mid frequencies. So I'm getting a hearing aid first and eventually will get high enough up on the waiting list for an MRI to see if there's anything causing it.


They don't think it's age related because of how one side is perfect (and I'm still young for age related changes), it's not exposure related as I've always worn ear filters for gigs and recording, and I've got a family history of deafness/acoustic neuromas - the only difference is that I don't think a hearing aid is anything to be ashamed of (twats, the lot of them), so I'll be getting one of them fitted next month.

I usually have an earbud in with some inane Youtube video about skincare or history whilst I try to sleep.


My main irritation in life is how, despite people knowing about it, they still try to have conversations with me at the same time as three others are going on in the same room, call me from noisy environments (FFS, you're using a mobile, fucking text me or take a photo of it and Whatsapp the thing!) or generally can't cope with the idea that actually, I'm not taking the piss in getting out of noisy situations, I genuinely cannot hear a fucking thing in them.

Feel your pain MASSIVELY! I was diagnosed with cookie bite hearing loss last year and it causes a huge dip in mid-frequency sounds. I work in quite a noisy environment and was struggling for ages to decipher conversations over the racket! It’s so frustrating and then people just talk to you like you’re stupid Apparently I was born with it so I’ve just been dealing with it for 34 years unaware

Hearing aids have completely changed my life! It doesn’t completely fix it as it’s such a difficult type of hearing loss to tune the aids to, but it has made my life so much more manageable! Let us know how you get on It’s reassuring to see someone else with the same kind of hearing loss as myself!

 

[Bumblebee999]

Yep its something i cant really describe. Like this morning its the same volume as yesterday. But yesterday i was filled with rage because of it. Every other noise like tv was driving me insane!

This morning im just watching tv like

Yes! Some days I can deal with it others I'm so irritable, even though its the same volume, I've being getting a feeling of fullness in my ear sometimes too, do you get that? Even bought an ear camera off Amazon but that agitated it further. X

 

[Bumblebee999]

I’ve been struggling with tinnitus since my early 20s (I’m 33 now) and there are some nights where it keeps me awake It’s constant high pitched ringing but gets worse when I’m stressed out. I’ve recently been diagnosed with ‘cookie bite’ hearing loss which is a genetic condition and I’m hoping my hearing aids will tune it out a bit?

I've only had it 11 weeks after starting antidepressants, I thought it was infection but after numerous doc visits it's not, got appointment with ENT soon, I started taking iron supplements 11 weeks ago too and have read high iron can cause it? You prob know so much more than me after suffering all these years, so sorry mine's pulsatile tinnitus in left ear only.

 

[Pesky Tarian]

I had a wisdom tooth out earlier this week and since then my tinnitus in the ear on the same side has been off the scale. I usually have a low intermittent whistle which I've had so long I can just ignore but this week it's been an ongoing loud old school Internet dial up sound, it's keeping me awake .

Has anyone had a similar experience after dental work? Please tell me it goes away.

 

[ThirdWorldGlam]

does anyone has a "popping" crackling sound? like when you are on an elevator or a flight but coming and going.
I already got this checked and got some drops to try but wow this is exhausting medical stuff, can't believe 2024 there are no solutions

 

[Bobbleowl90]

I’ve had tinnitus for around 10 years now (I’m early 30’s). I’ve seen ENT and neurology as I also suffer vertigo and migraines. My tinitus sounds like water gushing through a pipe and is there all the time but because it’s there all the time, I’ve just gotten used to it. I do wish there was something to stop it as I can’t sleep on a certain side as it makes it louder, but I’ve been told there’s absolutely nothing that can be done :/
---

Hi, I just get the pulsatile tinnitus 24/7, I've seen 3 ent consultants and had MRI and ultrasound, but both clear, which I expected. Have you got the heart beat in your ear? If so you need a vascular doctor or neurologist if you can get appointment, I've gone back to my doctors and told them about a fainting episode I had so my doc is looking into a vascular or neurologist but that's if I'm lucky, I'm in UK, I'm hoping for a ct angiogram to investigate my pulsatile tinnitus, I also have a lump under my ear which the ent cant find an answer for ( they weren't very good, one was awful, told me it was my nerves!) there's a Facebook page called Pulsatile Tinnitus Sufferers, they have info in the threads, wishing you luck

ah this is what I have. I’ve had a CT scan too.

 

[flutternutter]

I got tinnitus from sertraline. 3 days on it and the ringing started. I stopped the sertraline, but the tinnitus stayed. Just over 3 years. Went through some really bad times where I seriously contemplated ending it all. But I have family to consider, so I get on with it. It's horrible. I'm always worried that it'll get louder. For now it's tolerable.

Im on sertraline too. I had the tinnitus prior and took another medication which can also set it off.

I know it sounds crazy but I feel like I always KNEW I would get tinnitus, like either psychic or attracted it accidentally?

Do you think you felt like ending it because of the tinnitus or because of the feelings you had causing you to go on sertraline?
Not sure if youve read through or tried any advice earlier in the thread but there's so many thing which can be tried to help!

 

[SonicTheSpikeyThing]

Hi, I just get the pulsatile tinnitus 24/7, I've seen 3 ent consultants and had MRI and ultrasound, but both clear, which I expected. Have you got the heart beat in your ear? If so you need a vascular doctor or neurologist if you can get appointment, I've gone back to my doctors and told them about a fainting episode I had so my doc is looking into a vascular or neurologist but that's if I'm lucky, I'm in UK, I'm hoping for a ct angiogram to investigate my pulsatile tinnitus, I also have a lump under my ear which the ent cant find an answer for ( they weren't very good, one was awful, told me it was my nerves!) there's a Facebook page called Pulsatile Tinnitus Sufferers, they have info in the threads, wishing you luck

I have pulsatile tinnitus too along with other symptoms. I had a mri, came back clear. They then diagnosed me with migraines from my other symptoms. The PT they don’t care about and it’s worrying me sick. I’m at the one year mark now and the anxiety it’s given me is crazy

 

[SpindleWhorl]

I've had pulsile tinnitus for 2 days now driving me barmy. It goes away if I sort of push the skin over the side of my ear up

 

[lokiofasgard]

Hi. I have eustachia tube disorder. No one could pinpoint, saw like 4 doctors and ER told me I should rest more hahahahhahahahhahahahhahahaha. Accidentally saw a doctor who focused on people at uni who had not gotten relief for years and she immediately said it’s that. Sucks. We don’t have any solution to it so I’m living with it for over a year now. It is tinnitus plus really loudly hearing all sounds.