Maybe I’m being naive? Just all the medication. The feeds. The vomiting several times a night. Im a nurse and couldn’t think of anything worse than having shift work then having to do all that at night or during the day too. I know ‘most children’ with no extra needs dont sleep 12 hours a night and it’s not all rosey and an easy life and they’re up and things too during the night (part and parcel of having kids!). But it does seem like a full time medical/nursing need. I have done intensive care shifts looking after critically ill adults who need less intervention sometimes
I don’t know. It’s hard to comprehend. I don’t have children. But the point remains it really doesn’t sit well with me that she gives herself everything. And is devastated at the carers being cut. If she has the money (which she clearly does) then pay privately? I wish I could have kids and would hand on heart give them anything and everything over myself.
Thanks for replying, I was just curious that's all.
Jaxon isnt actually on that many medications, and since being told the date of when carers are being withdrawn she has chosen to stop 2 of his medications and has asked GOSH if they can stop his medication for his heart which in the past she has called his "life saving medications", in order for his daily care plan to be more manageable for her. None of his medications take hours to administer, cutting meds wont actually save her alot of time. When she first said she was cutting some meds she said she was stopping those that weren't making a difference or were non essential.
Shes conveniently stopped his anti-emetics. Did you notice that for the last few months she has hardly mentioned Jaxon vomiting? When she was losing carers the last time (otherwise known as keiras) she would film Jaxon vomiting and repeatedly went on about it. She was telling everyone he could vomit up to 50 times a day. She got keiras extended for 6 months after the media picked up on her story but since then she has hardly mentioned it.
She stopped putting stories up of him covered in vomit once keiras were extended for another 6 months. She wrote a post when he started the feeding school programme, she slipped up in this post and said that during 8 weeks (56 days) he would have normally vomited 56 times which is once a day, but during the programme he was sick 6 times during the 8 weeks, totally contradicted what she had been telling everyone including the media about him being sick up to 50 times a day.
Now shes losing carers, shes suddenly stopped his anti-emetics and has started doing stories about his vomiting. Shes also messed with his feed plan, shes stopped his night feeds and is ramming his daily intake of tube feeds into just 3 a day but on the nights he has carers she is making them do night feeds as well in order to "bulk him up". Stopping his anti-emetics and messing with his feeds is what is making him sick, as a nurse but also as a send parent, she knows what shes doing. But it looks good on the gram when shes doing her sob stories in order to get a new fundraiser or to keep his carers.
When she was doing the fundraiser for his chair, she wrote he needed a specialist chair as he has to be upright the whole time he is having a feed to reduce vomiting, she leaves him lying flat at night fast asleep having his feeds on his own.
She hides his milestones/progress too, if you look at her stories advertising this years calendars there are things listed in the achievements section for each month that shes never told anyone.
When she went through the continuing healthcare assessment, she was furious that they were scoring him low for things like incontinence, saying how he would have multiple nappys a day yet on her calendar she wrote that he achieved being able to use the potty and wears only one nappy a day.
She was angry he scored low for mobility, again she wrote his achievements on her calendar such as being able to get up and down the stairs, on and off the sofa, able to stand etc.
He scored low on communication and she was angry claiming he has no way to communicate with her and she has no idea if hes in pain, yet she shows Jaxon using a phone to call specific people he likes, he uses a iPad and chooses his own videos to watch and plays with apps, he can say words, answer her when she asks certain things, he told her on a story just the other day that his tube site was sore, he can call the cats by their name, he uses makaton, he can point, he can express when he is unhappy - he can communicate.
At night jaxons monitor that she screenshares often has a line cut off it, so people cant see, which breaks down the stats and it shows that he normally sleeps for over 11 hours. She shows the motion detected stats, that isnt him being awake. He may have moved his blanket or arms in his sleep. The stats show when a caregiver has actually been in to tend to him.
She also doesnt have to work a shift and then have to care for him. Shes did a nursing degree but wasnt working as a nurse until this summer as she had to register by a certain date, she registered, started working for just a few weeks, but has avoided mentioning anything since, shes never at work so shes either quit or something dodgy has happened. I suspect she just used the job and got registered so she could continue claiming to be a nurse for her brand image.
If you was a parent to Jaxon and he really needed carers and you knew he was losing them in 6 months, most people would have saved every single penny, shes spent the last few months blowing the lot. She uses continuing healthcare for childcare, he doesnt need that level of care. She used a hospice as a boarding kennel, to drop him off and fly off to another country. Carers complained in the past about her coming back pissed up and arguing. She would do stories openly saying she would use carers to go out and have the social life she deserves. Jaxon is at school plus she doesnt have to do a school run as he has transport so hes out the house for longer than other children, he has 60 hours of carers, his dad has him and her mom has him for a few hours each weekend. Kaytee will only be happy once she has a servant or a nanny
) 
HIYA KATIE YOU TWAT. 
