That's amazing!! That must feel like such a relief!Did anyone hear back about SEN schools for their children? My son got into the best one in Liverpool I’m so so happy, I thought he had no chance because none had got back to us but only him and 2 other children got a place for reception as the waiting lists are so full. Feel like this is going to help him so much🫶
Is there anything specific you’d like to help your child with? Or is it that you’d like progress to speed up a bit?Does anyone have any recommendations for therapies for ASD? My child gets SLT and OT, but I don’t feel like these are helping much.
I don't think there are any therapies for autistic kids like there is in America.Does anyone have any recommendations for therapies for ASD? My child gets SLT and OT, but I don’t feel like these are helping much.
How old is your daughter?Hi, thanks for your responses. I’m basically after a miracle (I know, I know). My child is non-verbal and doesn’t follow instructions. She’s not toilet trained. She’s very very very behind in almost every way. I’m so out of my depth. Nothing seems to work. Speech therapy isn’t reaching her. PECs didn’t work. I can’t engage her in anything. Food is a separate battle- I tried to get her referred to a dietician, but they knocked it back as she’s not underweight and she’s Autistic.
I suppose speech is the main thing, but I’d happily take progress in any area.
hi I hope you don’t mind me jumping in but has the speech therapist looked at any other kind of AAC’s besides PECS? It’s not a subject I know much about as my son doesn’t use them at present but I jointed a FB group where parents share and discuss AAC apps that can be used with iPads/tablets and their children seem to really benefit for them. The most important thing is that a method of communication can be found for your daughter. It might be worth looking into xxHi, thanks for your responses. I’m basically after a miracle (I know, I know). My child is non-verbal and doesn’t follow instructions. She’s not toilet trained. She’s very very very behind in almost every way. I’m so out of my depth. Nothing seems to work. Speech therapy isn’t reaching her. PECs didn’t work. I can’t engage her in anything. Food is a separate battle- I tried to get her referred to a dietician, but they knocked it back as she’s not underweight and she’s Autistic.
I suppose speech is the main thing, but I’d happily take progress in any area.
You’re not a terrible mother, we’re all learning as we go along and it sounds like you’re doing everything you can to help! Being persistent is the biggest thing and working with the school too, if she enjoys stuff in there do it at home too. They’ll all get there at their own pace and that’s all that mattersThank you so much for your replies. My daughter is 4. She gets OT through her EHCP at school. It is so worrying. I’m hoping that in ten years’ time; I’ll look back at this and wonder why I worried so much. Equally, I know that my current worries may well be confirmed. The SLT was talking at one point about using an iPad app for communication, but my daughter’s pretend play has improved a bit and she’s repeating words, so that idea has been dropped now. The SLT also suspects she is understanding more, which is obviously great. I just feel like I’m wasting valuable time and I don’t know what approach is best to take. I feel like a terrible mother. Sorry for being a whinge bag.
Have you looked into Gestalt language processing? Lots of autistic children learn language this way and not many SLT’s give this type of therapy.Thank you so much for your replies. My daughter is 4. She gets OT through her EHCP at school. It is so worrying. I’m hoping that in ten years’ time; I’ll look back at this and wonder why I worried so much. Equally, I know that my current worries may well be confirmed. The SLT was talking at one point about using an iPad app for communication, but my daughter’s pretend play has improved a bit and she’s repeating words, so that idea has been dropped now. The SLT also suspects she is understanding more, which is obviously great. I just feel like I’m wasting valuable time and I don’t know what approach is best to take. I feel like a terrible mother. Sorry for being a whinge bag.
It’s usually a play based assessment, so you’ll be asked to sit in the corner whilst a play therapist will bring out various toys and interact with your child. For us we had a tea set to role play with, some dolls, building blocks and a pretend telephone, and then they asked to role play with imaginary things such as a sink and washing up. We were asked to take several snacks with us that they used as part of the play. They also asked questions throughout, such as “what’s that?” whilst motioning with their eye movement only, to see if the child looks in that direction. It was far less traumatic than I had been expecting, and annoyingly we owned the majority of toys they brought out, so I felt that we gave a false sense of competency and adapting to new things as to us they weren’t new!Has anyone had a ASD assessment for their 3 year old?
My daughter has hers the end of this month, I just wondered what age appropriate things they might do with her in her assessment!
It's because there is a close link between autism and a difficult/traumatic birth. For instance, premature babies have a higher chance of having autism.Does anyone know/ever wondered why at an ASD assessment the consultant paediatrician asks questions about your pregnancy and birth? Just we’re always being told it’s something you are born with and couldn’t prevent etc, so why ask those questions?!
I’m actually going to ask them when my daughter has her assessment this month.
I don’t believe all the conspiracy theories out there how it’s caused by vaccines etc. However, I do sometimes find myself wondering if it was something I did to cause it, especially when I look back at videos for her first 6/8 months and she seemed so smiley all the time and engaged.
Hello, this is great thank you!Hello! I delayed my child’s start. She’s a summer baby - sounds a lot like your little one, but a year older.
My child has an EHCP. It sounds ludicrous that they are suggesting that mainstream is suitable. Definitely push hard for the specialist attached provision. My child will start at a similar provision in September this year.
I don’t know if the ehcp will cover nursery fees. My child attends a school nursery. There’s a small top up for the lunch hour and I pay that. I couldn’t face arguing the toss to be honest. You could try asking but they are v likely to say no as it will cost them money….
Have you applied for DLA? If not, then do!
Absolutely stick to your guns on the provision type. They are being difficult because there’s been a huge spike in SEN and money and places are in short supply. They will happily dump your child anywhere that’s the cheapest option. I know I’m sounding mean and cynical but experience has made me that way.
Something to bear in mind…they may try to say that if your child repeats nursery, he will have to go straight into year 1. They are more likely to say that if it’s specialist provision. If they agree a Sept 2025 start in reception- get it in writing. If they say he will need to go into year 1, then complain. There are fabulous Facebook groups who can support with this and indeed I’d be very happy to share my letter with you (I’m rather proud of it) so that you can copy whatever you want from it.
Also, I wouldn’t necessarily be in a hurry to accept 1-1 in mainstream. I’d be concerned that they’d struggle to recruit and you’ll get someone with little experience of ASD.
Sorry that probably wasn’t very helpful, but best of luck.
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