IBS/IBD sufferers...

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I’ve had a TI stricture and infliximab actually healed it.
 
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Has anyone had a positive fit test as I am freaking out
I have UC and always have positive FIT test when flaring. It shows blood in poo. Do you have IBD or you showing symptoms? Did they do a calprotectin test too? I know it's easy to say but try not to stress too much there are many reasons why it could be positive.
 
I don’t have an ibd diagnosis as yet, I’m waiting on a gastro appointment have been for 3 years I do have psoriatic arthritis and crohns and colitis run in that family. I have been having on and off bad sulphur burps, wind constipation but also a felling of not having completed when going to the loo
 
Sounds likely to be ibd. Ask to be put on pathway if you have a positive fit test.
Keep pushing I know it's tiring having to self advocate all the time. If the pain or bleeding get too bad go to a and e. Especially, if you become too constipated and cannot pass wind.
I had to go to a and e after collapsing in pain and I'd lost so much blood I was anaemic. Done a scope and had total uc of the large bowel. The GP kept saying it was piles. My calprotectin was over 8000. I wish I'd gone sooner.
 
I had to go to a and e after collapsing in pain and I'd lost so much blood I was anaemic. Done a scope and had total uc of the large bowel. The GP kept saying it was piles. My calprotectin was over 8000. I wish I'd gone sooner.
It's all about getting away from thr GP, they are clueless!

Went to mine during a flare for some pain relief and steriods, and got a lecture on addiction to pain meds!
 
I think I’m having a Diverticular flare up as my upper left abdomen is sore again (probably acid too which was suspected when I originally got diagnosed). It feels like so long ago since I had one so I’m racking my brains as to what has caused it. The only real change I can think of is I could just be flaring with tomato again, or it’s pineapple. So odd cause I’m usually fine with it. The worst thing is I always get zero advice from my doctor and I’ll just be told to go nil by mouth baring water for up to 72hrs. Absolutely no good to anyone.
 
MotherDragName has diverticular disease. She rarely if ever flares but she got a top tip from someone to drink diet ginger ale if she had a flare. She was rather specifically told to use the Tesco one but I don’t know how much of a deal breaker that part is. I have no idea how helpful or unhelpful this is but I figured I would share and you have no obligation to try it!
 
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Has anyone been prescribed upadacitinib?
Infixamab isn't working. The vedo failed. Upa or storma is my choice.
The side effects are extensive.
On another note I'm so fed up of people telling me what to eat and saying it's my fault. Stupid netflix program.
 
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I've not, but it sounds like it's a last resort kinda medication. I hope you get well soon!

I'm glad no one around has watched the Netflix Doc, I've not, but it seems like it was more a healthy eating doc than something for any of us with a disease!
 
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Hey guys, didn’t realise this chat was here. I was diagnosed with IBS 10 years ago, but over the last few months I can’t eat a thing without getting horrific diarrhea (sorry) I even couldn’t control messing myself like a newborn. Has anyone’s gotten this bad over time? Or could it be something different? I’ve a second opinion GP appointment coming up because my other one got bloods done and it’s showing over the panic limits for GGT (liver I think) and typical - she said it’s fine, while I’m over here struggling and suffering with the symptoms. Is this normal for bowel problems over time? Thought someone on here might have an idea or dealt with this, while I wait for my GP appointment.
 
If you're not showing inflamation then get them to test for Bile Malabsorbtion, really similar symptoms to IBDs and IBS
 
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