I am glad you was able to get the diagnosis you needed. Hope things are a bit better now.I've just been diagnosed at 28, finally and started on medication.
I've not written on this thread before, I did read it a while ago while I was going through diagnosis but I thought I would share how my diagnosis went if thats ok
I originally spoke to my GP 2 years ago as I was struggling more than before, who told me there is no way to be diagnosed in my local area (in London). Which was true at the time, so it meant I was just left to my own devices and given depression meds which never worked so I was taken off of them.
I struggled working in lockdown, I was always at my best working in my office or anywhere but the house so the adjustment never happened.
This March I realised I was really close to losing my job because I couldn't concentrate for anything and that got me googling to try to figure something out.
I found out about the 'Right to choose' system in England. I haven't seen anyone else mention this, but if you're in England you have the right to choose different providers for certain things - including ADHD diagnosis. Alot of GPs fight this and some do say no, I've been people have to take it up with the NHS themselves to get it done. But basically you get a referal to a private psychiatrist and the NHS pay.
Psychiatry-UK is the big one and who I went with. They have a funding agreement already in place so are the easiest, ADHD360 are another good one the NHS will send you to potentially but its worth chatting to your own GP.
I got my GP referral in April, diagnosed in July and am now on medication. BUT I was rushed through to medication and had to prove why I'm struggling to do so. Most people will be waiting 5 months from diagnosis to begin sadly. They're currently booking for next March so the wait times are getting pretty long, if you get reffered now it'll take a year to get medication probably.
Sorry if that's long winded but it's certainly worth looking into if there is no pathway on the regular NHS in your area or the waitlist is anything above a year. There is a facebook group if you search for ADHD right to choose, and they were helpful with questions I had while convincing my GP!
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That’s really helpful. I was told the same, there are no adult services for ADHD so I was just going to go private. I think I still will as my GP says they “don’t see Adh in me” as I can sit and hold a conversation for ten minutes? I’m like, mate, try spending 12 hours in my head it’s like a meeting of over thinkers anonymous and there’s about 3 guys in there trying to keep a lid on it but they work shifts so every few hours stuff goes wrong.I've just been diagnosed at 28, finally and started on medication.
I've not written on this thread before, I did read it a while ago while I was going through diagnosis but I thought I would share how my diagnosis went if thats ok
I originally spoke to my GP 2 years ago as I was struggling more than before, who told me there is no way to be diagnosed in my local area (in London). Which was true at the time, so it meant I was just left to my own devices and given depression meds which never worked so I was taken off of them.
I struggled working in lockdown, I was always at my best working in my office or anywhere but the house so the adjustment never happened.
This March I realised I was really close to losing my job because I couldn't concentrate for anything and that got me googling to try to figure something out.
I found out about the 'Right to choose' system in England. I haven't seen anyone else mention this, but if you're in England you have the right to choose different providers for certain things - including ADHD diagnosis. Alot of GPs fight this and some do say no, I've been people have to take it up with the NHS themselves to get it done. But basically you get a referal to a private psychiatrist and the NHS pay.
Psychiatry-UK is the big one and who I went with. They have a funding agreement already in place so are the easiest, ADHD360 are another good one the NHS will send you to potentially but its worth chatting to your own GP.
I got my GP referral in April, diagnosed in July and am now on medication. BUT I was rushed through to medication and had to prove why I'm struggling to do so. Most people will be waiting 5 months from diagnosis to begin sadly. They're currently booking for next March so the wait times are getting pretty long, if you get reffered now it'll take a year to get medication probably.
Sorry if that's long winded but it's certainly worth looking into if there is no pathway on the regular NHS in your area or the waitlist is anything above a year. There is a facebook group if you search for ADHD right to choose, and they were helpful with questions I had while convincing my GP!
That's so frustrating - they really aren't clear about anything.
Yeah I was advised against it purely because I'm pretty succesful academically, but they don't see the struggle that goes into doing anything sometimes! I hope you can bring your GP around
Similar, academically successful. Can’t keep a job though.
Ignore the GP - they are in no way a specialist and shouldn’t be speaking to you like that!
i have been diagnosed since early teens and I am academically successful. You have a right to choose for treatment so def persue this still
I saw a video on youtube this morning (I know, not the most verified source) that was talking about the trouble people with ADHD have with sleep. ()
I am someone who can nap during the day if I'm tired however actually falling asleep ranges from 'takes fifteen minutes' to 'bleeping impossible' and I cannot tell you why it changes. My brain does not shut off at all on the days when it's bad, it just comes up with more and more scenarios, things to think about and even re-runs of TV shows or music videos. Just wondered if anyone else had had that experience too?
Really pisses me off because my OH can fall asleep within 5 minutes of getting into bed
I am someone who can nap during the day if I'm tired however actually falling asleep ranges from 'takes fifteen minutes' to 'bleeping impossible' and I cannot tell you why it changes. My brain does not shut off at all on the days when it's bad, it just comes up with more and more scenarios, things to think about and even re-runs of TV shows or music videos. Just wondered if anyone else had had that experience too?
Really pisses me off because my OH can fall asleep within 5 minutes of getting into bed
I’ve always had trouble falling asleep. At sleep overs growing up I was always the last one to drop off. Nowadays it’s very hit and miss. Can nap in the day if I’m really tired but come night time it’s a different story. The mind boggles at how people can fall asleep within minutes, even my kids can manage it better than me.
I use counting to help me drop off. Literally just counting in my head until I drop off. I also have a little scenario which I go to as well. Basically involves me imagining myself lying on a really comfy cloud that is flying through the sky and taking me to the land of nod
it sounds lame and corny but keeping my mind on these silly thoughts helps me stop stressing about other things at night. My brain still sometimes tries to focus on other thoughts that keep me awake, but as soon as I realise try to loop back to my ‘sleepy thoughts’. It’s a work in progress but it has helped. Harder after a day where something negative has happened though.
I use counting to help me drop off. Literally just counting in my head until I drop off. I also have a little scenario which I go to as well. Basically involves me imagining myself lying on a really comfy cloud that is flying through the sky and taking me to the land of nod
it sounds lame and corny but keeping my mind on these silly thoughts helps me stop stressing about other things at night. My brain still sometimes tries to focus on other thoughts that keep me awake, but as soon as I realise try to loop back to my ‘sleepy thoughts’. It’s a work in progress but it has helped. Harder after a day where something negative has happened though.
My sleep got into a better pattern when I was given amitriptyline for fibro. I don't take it now but my sleep has stayed much better with fewer thoughts, but I do take melatonin and 5-HTP.
Does anyone else find they become obsessed with a topic for a while, and then you suddenly lose interest seemingly over night? I’m going through this now and have got it into my head that I really want to learn a new skill, but I’m reluctant because I don’t want to get all set up only to get bored one day and never look at it again. The problem is that with a lot of hobbies you usually have to spend money to get started, and I’ve had plenty of instances in the past where one day this hobby is my life and then the next I’m just not interested but I’ve put money into all the stuff and time into reading up on said hobby, and it’s just really disheartening to not be fussed about it anymore.
I’d love to be able to stick at something, I wonder if it’s a case of me pushing through and forcing myself to stick with it? Maybe the thing will become fun again? I drive myself crazy during the ‘obsessive’ phase reading and watching stuff relating to what ever it is I’m interested in to death and then doing it for a while before I hit a ‘wall’ I guess.
I’d love to be able to stick at something, I wonder if it’s a case of me pushing through and forcing myself to stick with it? Maybe the thing will become fun again? I drive myself crazy during the ‘obsessive’ phase reading and watching stuff relating to what ever it is I’m interested in to death and then doing it for a while before I hit a ‘wall’ I guess.
Kids are currently going through assessment , school raised their concerns over my daughter . And her issues with memory, changes of routine , her emotions are very intense and she can not regulate amongst many things. Including unfortunately violent outbursts during these previous lockdowns towards me .
My son is also showing a lot of signs of hyper activity , not sleeping , hyper focused on only his likes , explosive emotions , issues when he hurts himself and others touching him. And sensory processing issues .
but during form filling and giving statements , everything in regards to my daughter is myself . How she behaves now as a child was my behaviour . I was constantly told if I paid more attention I would excel . My emotions have always been unregulated , I can’t complete tasks , my head never ever stops its constantly going . And I have took many silly dangerous risks over the years and became dependant on alcohol . Then cigarettes and now coffee . That’s just a few things upon a massive lists . Suspecting I may be like my children has actually explained a lot of things in mt
Behaviour now and as a child. I don’t know if I will seek a diagnosis , my parents aren’t supportive and wouldn’t ever help me in regards to discussing my behaviours in childhood .
My son is also showing a lot of signs of hyper activity , not sleeping , hyper focused on only his likes , explosive emotions , issues when he hurts himself and others touching him. And sensory processing issues .
but during form filling and giving statements , everything in regards to my daughter is myself . How she behaves now as a child was my behaviour . I was constantly told if I paid more attention I would excel . My emotions have always been unregulated , I can’t complete tasks , my head never ever stops its constantly going . And I have took many silly dangerous risks over the years and became dependant on alcohol . Then cigarettes and now coffee . That’s just a few things upon a massive lists . Suspecting I may be like my children has actually explained a lot of things in mt
Behaviour now and as a child. I don’t know if I will seek a diagnosis , my parents aren’t supportive and wouldn’t ever help me in regards to discussing my behaviours in childhood .
Hello all! I’ve finally organised an appointment with my GP, I’m going to see how long it looks like it will take before looking at private options. I’ve been thinking I’m neurodivergent for a couple years but trying to figure out in what way and I think I’ve got it.
Feeling the same things about starting new hobbies, I’ve joined a class but worried my attention will fade yet again.
Feeling the same things about starting new hobbies, I’ve joined a class but worried my attention will fade yet again.
Can anyone else relate to this?
Long before the idea of adhd crossed my mind, I realized I was sooooo keen to take Stuff on, start projects etc and so I started saying no. And I started saying I really love this idea and I’m so interested but I’d be taking too much on and I’d let you down by not completing it.
It helped to an extent. Probably freed up more time for being extremely emotional, overthinking and procrastinating.
It helped to an extent. Probably freed up more time for being extremely emotional, overthinking and procrastinating.
I would love to know is the medication working? Any side effects from it. Thanks.
Thanks for your story, really helpfu, I’d love to know is the medication working? Any side effects?I've just been diagnosed at 28, finally and started on medication.
I've not written on this thread before, I did read it a while ago while I was going through diagnosis but I thought I would share how my diagnosis went if thats ok
I originally spoke to my GP 2 years ago as I was struggling more than before, who told me there is no way to be diagnosed in my local area (in London). Which was true at the time, so it meant I was just left to my own devices and given depression meds which never worked so I was taken off of them.
I struggled working in lockdown, I was always at my best working in my office or anywhere but the house so the adjustment never happened.
This March I realised I was really close to losing my job because I couldn't concentrate for anything and that got me googling to try to figure something out.
I found out about the 'Right to choose' system in England. I haven't seen anyone else mention this, but if you're in England you have the right to choose different providers for certain things - including ADHD diagnosis. Alot of GPs fight this and some do say no, I've been people have to take it up with the NHS themselves to get it done. But basically you get a referal to a private psychiatrist and the NHS pay.
Psychiatry-UK is the big one and who I went with. They have a funding agreement already in place so are the easiest, ADHD360 are another good one the NHS will send you to potentially but its worth chatting to your own GP.
I got my GP referral in April, diagnosed in July and am now on medication. BUT I was rushed through to medication and had to prove why I'm struggling to do so. Most people will be waiting 5 months from diagnosis to begin sadly. They're currently booking for next March so the wait times are getting pretty long, if you get reffered now it'll take a year to get medication probably.
Sorry if that's long winded but it's certainly worth looking into if there is no pathway on the regular NHS in your area or the waitlist is anything above a year. There is a facebook group if you search for ADHD right to choose, and they were helpful with questions I had while convincing my GP!
Not overly but it's getting better on my new dosage I think!
Only real side effect has been heart pain when I exercise, which is annoying as a regular runner! But I'm hoping that'll calm down?
I have my appointment in September so I haven’t started medication yet
I haven’t read all the thread (concentration 
) but does anyone have an Aspergers diagnosis that went on to get an adhd one? If so, has it been useful? I’m not sure how helpful it would be. I don’t want medication so a private assessment would be sufficient. I didn’t press on it during an Aspergers assessment because I was all over the place but he suspected adhd traits but not above a threshold even though he didn’t dig deeper on those questions which is annoying. I’m going through therapy now and it’s hard having to reinforce ASD difficulties e.g. one exercise was to stare at yourself in the mirror 
I don’t want to go to my GP locum because it’ll be another two years wait…
) but does anyone have an Aspergers diagnosis that went on to get an adhd one? If so, has it been useful? I’m not sure how helpful it would be. I don’t want medication so a private assessment would be sufficient. I didn’t press on it during an Aspergers assessment because I was all over the place but he suspected adhd traits but not above a threshold even though he didn’t dig deeper on those questions which is annoying. I’m going through therapy now and it’s hard having to reinforce ASD difficulties e.g. one exercise was to stare at yourself in the mirror I don’t want to go to my 
My sleep pattern has been opposite everyone else's literally since I was born. My mother told me that I slept all day but would be wide awake at night and wanting attention. After a week of this, she propped me up in a corner of the sofa with cushions and poked me every time I started to nod until I slept at night because I was tired - her mother-in-law thought she was a terribly cruel mother!
After teenage years, I reverted back and did all my university studying and writing at night. Now I'm old and not working, I happily go to bed at dawn and sleep until lunchtime which I need to alter as it means that I don't get a lot done and not all chores can be done at 1am.
I was born at 0435 and I seem to be most awake around that time. For years I could never sleep during the day and needed full blackout in my room (light and sound were very anti-sleep) but now I'm not too bad Withington, depending on how tired I am.
I saw the GP… 24 month wait time! I will be investigating private options but I’m worried about the £££
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