Posting here for a quick advice, will look properly soon but am flailing.
I wrote a long post and accidentally clicked off the page and lost it.
Long story, have touched on some of it in previous post, but just had ehcp applications refused today as no evidence from school.
School has said kids don't need ehcp as are achieving academic milestones.
they're actually not in some cases and school has been disingenuous ref this but there is big risk of the kids not achieving at all due to increased school anxiety and struggling with the environment.
School SENCo and other staff have been really horrible to me, very challenging and treating me like a Munchausens mum and due to my eldest being an expert in masking they just see a quiet and compliant child with attendance issues, so I have zero hope of school engaging with ehcp application based on everything they have already done and said
Both kids are showing traits of my two main inheritable conditions and possible autism too although I haven't been diagnosed all the signs are there
Some physical health stuff too which is impacting absence figures
Both kids are on waiting lists for various assessments and have been quoted at least another year to wait (referred a year ago all based on information solely from me).
Their dad has stated more than once it's all in my head and any of their symptoms are learned behaviour from me and has told them this with back up from his partner who is a medical professional
I have kept many of my health issues under wraps from the kids (until recently when I could no longer hold it together)
much of my kids' 'stuff' is individual to them and not anything that I experience but is in my wider family who they rarely see due to geography.
The things the kids are exhibiting started from a very very young age and I'd say zero chance of it being copied or learned from me.
So my quick question became an essay.
I can't afford private assessments but might be able to get some financial support from a relativemy actual question is : does anyone know any decent reputable private assessment organisations for kids who are kosher and who's diagnosis would hold up with education and health providers?
Would be ideal to have a one stop shop for things like SPD, autism ADHD, dyslexia dyspraxia etc
Seems to be such a broad range of providers and costs.
Don't want to waste time or money on something nobody will acknowledge but equally Don't feel we can progress without a diagnosis or even just to be told they don't have any of these conditions.
I have been absolutely traumatised trying to manage my increased symptoms for years without being believed and now seeing my children going through the same thing and it really hurts me for them and makes me feel so vulnerable knowing that all involved think it's all coming from me.
They both have very different symptoms/ traits from each other so trying to juggle their needs with my own and constant refereeing where their own symptoms wind each other up.
It's
bleeping mayhem in the shawads household, especially when they don't feel safe to unmask anywhere else!
If you get to the end of this post: well done