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I have that. But it's not that. My optic nerves are pale, meaning I have neuropathy too.It’s awful when you feel so lost and helpless with your health.
Probably not this but have you heard of Irlen’s Syndrome for your eyes? Maybe worth a check. People often get misdiagnosed with colourblindness or visual stress.
Whether that's you, your child or partner.
As an undiagnosed adult, I am really struggling to find support of some sort. It seems that most people think it's easy getting a diagnosis.
My story:
I was diagnosed at 4 with a condition called Nystgamus, which means my eyes shake. (you can see this if I take my glasses off and cover one eye) My parents were told there's no cause for it, which is usually the case for some diagnosed as child.
Fast forward to when I was 19. I moved cities to study and was seen by another eye hospital. They discovered that I was colourblind and did actually have another eye condition. Fast forward to when I was 26. I was doing some research with the local uni. One of their lecturers is also a consultant at the local hospital. He believed I was misdiagnosed when I was 19.
I'm now 32 and still have no answer. We discovered this week that my pupils are of unequal size. (this generally isn't the cause of a serious underlying medical problem) I've had so many tests done and no one still has an answer.
I also have another undiagnosed problem. Diagnosed at 24 with asthma. No real problems until the end of 2020 where I had days where I was struggling to walk. (bearing in mind that just before lockdown, I'd ran 30 miles) Because steroids didn't work and my x ray was clear, I was constantly told it was anxiety. But no one could explain (or seemed to be that bothered) as to why things like spray cans (deodorant, etc) was making me cough. I ended up complaining because it just seemed that no one was listening. My complaint led a GP to realise that when I breathe in, my chest doesn't really go in and out. I had a spirometry (breathing test) and it was found that there's a problem; but the consultant didn't know what. He doesn't believe it's anxiety or asthma.
He thinks there's a possibility it's my heart and sent me for a heart scan which I had this week.
(sorry for the length!)
As an undiagnosed adult, I am really struggling to find support of some sort. It seems that most people think it's easy getting a diagnosis.
My story:
I was diagnosed at 4 with a condition called Nystgamus, which means my eyes shake. (you can see this if I take my glasses off and cover one eye) My parents were told there's no cause for it, which is usually the case for some diagnosed as child.
Fast forward to when I was 19. I moved cities to study and was seen by another eye hospital. They discovered that I was colourblind and did actually have another eye condition. Fast forward to when I was 26. I was doing some research with the local uni. One of their lecturers is also a consultant at the local hospital. He believed I was misdiagnosed when I was 19.
I'm now 32 and still have no answer. We discovered this week that my pupils are of unequal size. (this generally isn't the cause of a serious underlying medical problem) I've had so many tests done and no one still has an answer.
I also have another undiagnosed problem. Diagnosed at 24 with asthma. No real problems until the end of 2020 where I had days where I was struggling to walk. (bearing in mind that just before lockdown, I'd ran 30 miles) Because steroids didn't work and my x ray was clear, I was constantly told it was anxiety. But no one could explain (or seemed to be that bothered) as to why things like spray cans (deodorant, etc) was making me cough. I ended up complaining because it just seemed that no one was listening. My complaint led a GP to realise that when I breathe in, my chest doesn't really go in and out. I had a spirometry (breathing test) and it was found that there's a problem; but the consultant didn't know what. He doesn't believe it's anxiety or asthma.
He thinks there's a possibility it's my heart and sent me for a heart scan which I had this week.
(sorry for the length!)