First thing I do when I have a debilitating headache is put my bleeping phone down. There’s only so much a blue light filter thingy can do.
Uh oh!Is she heading for the I HAVE LYME DISEASE thing now? The private tests for that are about £99.
She'll never do that because then she'd have to give up her phone. (Basing my knowledge of this on Saul's brother in Better Call Saul, so may not be entirely accurate.)Surely she will branch out to MCAS first? Mast Cell, allergic to electricity has to be in her future.
But think of the mileage in being off grid/ no electric, the constant complaining about how everything is electric. Of course she will keep her phone as it’s her only lifeline!She'll never do that because then she'd have to give up her phone. (Basing my knowledge of this on Saul's brother in Better Call Saul, so may not be entirely accurate.)
She'll have to handwrite her tweets on (reams of) paper then send one of the Kraus outside with the phone to send them.But think of the mileage in being off grid/ no electric, the constant complaining about how everything is electric. Of course she will keep her phone as it’s her only lifeline!
MCAS first until she finds out you can’t booze
You can't take the kids to lake Constance because you're (allegedly) on the bones of your arse! Camping costs €11 for adults, €6 for children per night, plus between €10 and €25 a night for the pitch, (prices for a random campsite I found, but I'd imagine they're all much of a muchness). Plus you've got to get there and it's over 500 miles from Dover (no idea where she lives, somewhere on the south coast?), so add in the ferry, plus a minimum of two days driving so another overnight stop, plus food, plus stuff to do for however long they're staying.She's such a fun vampire. Must have seen Jack's post last night.
Classic.I haven’t got time to trawl, sadly - but she has already laid the groundwork for MCAS on several occasions (as well as POTS). Basically, if it is verging on being vague enough to be an “elimination” illness, RSM will almost certainly breadcrumb it (and ask for funding for private testing and/or aids required)
The world of ME is littered with them. The Long Covid world is even worse as they are just trying any old tit. I saw a woman on tv spent her life savings on some plasma exchange in Germany. It didn’t work.Feeling a bit sad really. I can’t help but think that many of these private medical test companies in the UK just prey on people like RSM. I hope in a way she gets the results she wants. But at the same time, if these companies and their results were reliable, if the correlations were real, I don’t believe the NHS would be ignoring them. Just snake oil merchants maybe
Shocking that they haven’t bothered to develop a test. How common is ME. You’d think it would make economic sense (as well as being good for well-being obviously)The world of ME is littered with them. The Long Covid world is even worse as they are just trying any old tit. I saw a woman on tv spent her life savings on some plasma exchange in Germany. It didn’t work.
Because nobody bothered to develop a test for ME (despite there being numerous biological markers found) it’s always the end of the line, diagnosis of exclusion. No treatment. It’s very attractive to have a test which says “you have x”
Perhaps because for so long it was a badge of honour to be exhausted and burned out. Very sadShocking that they haven’t bothered to develop a test. How common is ME. You’d think it would make economic sense (as well as being good for well-being obviously)