Why are they drinking large coffee's after dinner?? Also someone tell Summer to lay off the cream, my god.
OmgP thnks shes a video vixen, and should be rolling on the hood of Whitesnake's car.
Thats so discouraging but I'm not surprised. When i got my dx, i asked what i could do to alleviate symptoms. I had a 3yo to look after.I went to Stanford's 'world renown" Autonomic lab for five years and I got zero help. Zero. Just mega bills.
I'm just going by what said.Dirt, dust, sand haze....none of the above. Paulas nuts lol
pretty sure it’s a vanilla latteView attachment 167438
Why are they drinking large coffee's after dinner?? Also someone tell Summer to lay off the cream, my god.
Amen! Its been so freaking hot this week. I chose not to open my pool this year because of the COVID stuff. People love to come swim, so I didnt want drama when I said no. Now I am regretting it. Yesterday I sat out back and had one of my grandsons sprinklers on to cool off. Beside my covered pool mind you. My neighbor, who is 81 going on 21 (and I ADORE) yells out his window: "I hope you didnt eat before getting in the water! If you get a cramp just hollar!" LOLNone at all over here, either. I was concerned because I have no walls on the back of my house right now. My 33 year old son came to look and now all of my kids and a few neighbors are building a large slide into my koi pond. I’m leaving them to be silly. Although I know I’ll be hitting that slide hard before bed!
Welcome to my life then and yours to mine! I truly don't think anyone could understand this "devil"...I have a daughter with MS and another with autonomic problems, possibly POTS.
Welcome to my life then and yours to mine! I truly don't think anyone could understand this "devil"...I have a daughter with MS and another with autonomic problems, possibly POTS.
Best to you and your daughters in finding good answers and a doc! Have you looked into Dr. Grubb in Cleveland yet? I hear he's pretty darn good.I have two daughters with MCAD/S and the younger one was diagnosed with POTS due to mast cell flares... They are both in their teens and we are navigating that world with also having Autism, which is super difficult! So, I totally get it y’all!!
I don’t like sharing all their medical history, even though neither really care. If we could find answers, they would love to have their lives back. We have recently decided that we cannot even find a good doctor in our state to help them and will be traveling soon to find better care. We have seen the only 1 doctor in our state that will even provide care and he has a horrible bedside manner that I won’t put up with...
Yeah jeez, would probably be best if some people make use of itIsn’t there an ignore button? Seems like we can avoid this by using it? I come here to listen to others and voice my opinion. I don’t always agree. I just scroll. This is my escape right now. I like to hear what people think and just don’t understand why we need to attack?
Thank you! I enjoy laughing alongside all you lovelies.I cant stop staring at your avatar. Literally. DEAD.
I didn't know that! Maybe that explains some of my weirdness!Ive learned that people with Pots, EDS, and MCAS are more likely to be on the spectrum.
I would have kept riding, too. I am a total cynic and am very leery of anyone who approaches me in public. I try my best to keep my rbf on, but for some reason I look like someone who would be helpful, which also makes me an easy target. When I am approached like that my first thought is "why is this person approaching me and not someone else?" If I see that they could overpower me, I move on.This morning on my bike, a young man, probably age 18-20 tried to flag me down and was saying he was lost. Probably outweighed me by 30 pounds. I didn’t stop out of fear that he could overpower me. Was I wrong by not getting involved or being the “hero”? I know it maybe selfish, but I have to look out for myself first.
And you know what I just noticed? P's arms fit into Asas shirt. It isnt skin tight on her gut. That is probably a 2xl, since Asa is not small and doesnt wear skin tight items. So what should that tell P? Stop trying to stuff yourself in the wrong damn size! I dont understand why she thinks painted on clothing is flattering. If she is "just right" in a mens 2xl, she isnt a 14 top. Period.
So boring. Yet so much.
Ok....first, why does this family have to do every goddamn thng together? Seriously. When my kids were almost 19 and 22 they arent going to just sit out in the heat all day because I declared a pool day!
P and her curves. LOL. Peep her when she is sitting in the chair with the towel. She has NO boobs. Isaiah is stacked compared to her. She only has boobs when shes got an underwire bra hiking them up.
Asa....good job mentioning how the little bands break her hair.
Did anyone notice that when they were doing the Tik Tok that P took her hair down and was shaking it? P thnks shes a video vixen, and should be rolling on the hood of Whitesnake's car.
Asa. You are not ashy. Enough said. Idiot.
That was pointless
Tonight's vlog 29.6.20
It just dropped xxx
I think Paula may be referring to smog, lolI'm just going by what said.
The duststorm is something that was completely outside of her ability to understand.
I was amused listening to her go on about it.
She's so brilliant and all.
Maybe Paula can't read a map?
Not only dent but collapse it And flatten the tiresThe only way I see P on the hood of a car is if someone went hunting for wild pig and they strapped there prize down. Otherwise she starts rolling around she’s just going to deny a perfectly good hood.
I feel terrible for you...I truly do. Having small children and then this! And the horrific fatigue, etc. Oh my!Thats so discouraging but I'm not surprised. When i got my dx, i asked what i could do to alleviate symptoms. I had a 3yo to look after.
I was told salt and water. Didnt really help. So my cardiologist reccommended for me to get a full body spacesuit thanks doc. Ill get right on that
I have learned to have a stool in the shower, i sit on the toilet to brush my teeth. Im 34 in the body of someone much older. My heartrate gets up to 159bpm JUST STANDING CALMLY. I hate it. I feel so bad that i cant keep up with my kids. My 7yo doesnt remember me healthy. My 3yo will never know me how i was. Its sad but also good, i guess. They will never know
Guilty.View attachment 167438
Why are they drinking large coffee's after dinner?? Also someone tell Summer to lay off the cream, my god.