Endometriosis

New to Tattle Life? Click "Order Thread by Most Liked Posts" button below to get an idea of what the site is about:
How are you feeling?! Sending you love and i hope you have a speedy recovery. I would recommend taking laxatives right away, will help in the long run! I bet you are relieved to finally know whats been going on! ❤❤
Hi,
I am doing quite well thanks. I have not been taking the opioids that they prescribed as I find Tylenol is working just fine for me. Plus, the opioids in the hospital made me nauseous and vomit and I don't want to be straining my stomach through vomiting. I had some pain in my shoulders, chest, and ribs last night from the gas they put in but I am okay today. I also managed to go number 2, lol. I started laxatives two days before my surgery and took some last night, so hopefully, I will be okay. I have been having foods with a lot of fiber and drinking plenty of fluids too ❤
 
  • Heart
Reactions: 1
Hey guys, just after some advice... Always had painful heavy periods & they made me so poorly, I'd have back & leg pain, painful bowel movements the lot but just thought it was normal for periods as heavy painful periods run in my family. Went on the pill 8 years ago and I do experience pain but it settled for a bit. A few years ago I started having really painful sex, breakthrough bleeding & pain on my left side (sort of where my ovary would be) and it would come out of nowhere & stop me walking sometimes because it was so painful. Long story short I ended up under gyny and had a laparoscopy at the end of 2018. He told me that I had endo scarring on my left side but said he had no other concerns and I was discharged there & then, it was straight after my surgery and tbh I was just so relieved they hadn't found cancer (I've had a string of abnormal smears & treatments for this) that I dismissed it. Fast forward a few years and I still experience painful sex, I get terrible pain in my lower back, hips, groin and back of my legs, I get pain before I urinate and when I urinate and other symptoms that I just never clicked. Anyway, I've put it back to my Dr and waiting for a phone consult but just wanted some advice really because I don't understand the scarring but never receiving an official diagnosis. Plus, I feel kinda guilty for going to the GP as I know so many women with endo that are in so much more pain than I am. Does it sound like I'm putting 2 & 2 together & getting 6 or is it worth persevering with the Dr's? I'm just at the end of my tether.

Sorry if this doesn't make sense, I've just had a brain spill!
 
Hey guys, just after some advice... Always had painful heavy periods & they made me so poorly, I'd have back & leg pain, painful bowel movements the lot but just thought it was normal for periods as heavy painful periods run in my family. Went on the pill 8 years ago and I do experience pain but it settled for a bit. A few years ago I started having really painful sex, breakthrough bleeding & pain on my left side (sort of where my ovary would be) and it would come out of nowhere & stop me walking sometimes because it was so painful. Long story short I ended up under gyny and had a laparoscopy at the end of 2018. He told me that I had endo scarring on my left side but said he had no other concerns and I was discharged there & then, it was straight after my surgery and tbh I was just so relieved they hadn't found cancer (I've had a string of abnormal smears & treatments for this) that I dismissed it. Fast forward a few years and I still experience painful sex, I get terrible pain in my lower back, hips, groin and back of my legs, I get pain before I urinate and when I urinate and other symptoms that I just never clicked. Anyway, I've put it back to my Dr and waiting for a phone consult but just wanted some advice really because I don't understand the scarring but never receiving an official diagnosis. Plus, I feel kinda guilty for going to the GP as I know so many women with endo that are in so much more pain than I am. Does it sound like I'm putting 2 & 2 together & getting 6 or is it worth persevering with the Dr's? I'm just at the end of my tether.

Sorry if this doesn't make sense, I've just had a brain spill!
So, did he not remove anything? Was he just a regular gynecologist or an endometriosis excision specialist? The latter is harder to come by but will make all of the difference in terms of diagnosis and removal... most normal gyns can't even identify endo properly. I would put a request in with your GP to get a referral to a specialist, not just a regular gynecologist. You may have to push for it but don't give up. I am not sure where you are but here are a few links... also, make sure they specialise in excision removal NOT ablation... ablation just burns it off from the top, like pulling a weed without removing the root. Excision removes it completely with the root. Good luck. I found my surgeon through the Nancy Nook fb page.

https://www.google.com/maps/d/viewer?usp=sharing&mid=1hd_-wSlqZWOlR5VxPhIN3oAbJh4 (map of surgeons, may have details as to if they are specialists or not)
 
Bumping this. I am having my lap and excision next week... I am really nervous. If you have had both, what helped you recover?
Good luck! I had lap & excision (along with a hysteroscopy & tube flush - I was struggling to get pregnant & Long history of endo) in 2012. Rest helped! Lie around watching tit telly. I hope it goes well - let us know x
 
Good luck! I had lap & excision (along with a hysteroscopy & tube flush - I was struggling to get pregnant & Long history of endo) in 2012. Rest helped! Lie around watching tit telly. I hope it goes well - let us know x
Hey, I already had it. It will be 7 days post-op tomorrow. Surprisingly, my recovery so far has been "easy." The first two days post-op I had pain but it wasn't unbearable and I did not have to take the prescription opioids, I just took OTC pain. The pain I would get with an endo flare-up was far worse. I slept elevated for the first 3 nights and then on Fri, I was able to start sleeping on my side again, and Sat and Sun I was fine laying lower down and sleeping on my stomach. My stomach was bloated but has since gone down and looks normal again. I have managed to walk around the block which is nice. I now only have a few twinges every now and then. I am tired though so am still taking it easy xx
 
  • Like
Reactions: 1
So, did he not remove anything? Was he just a regular gynecologist or an endometriosis excision specialist? The latter is harder to come by but will make all of the difference in terms of diagnosis and removal... most normal gyns can't even identify endo properly. I would put a request in with your GP to get a referral to a specialist, not just a regular gynecologist. You may have to push for it but don't give up. I am not sure where you are but here are a few links... also, make sure they specialise in excision removal NOT ablation... ablation just burns it off from the top, like pulling a weed without removing the root. Excision removes it completely with the root. Good luck. I found my surgeon through the Nancy Nook fb page.

https://www.google.com/maps/d/viewer?usp=sharing&mid=1hd_-wSlqZWOlR5VxPhIN3oAbJh4 (map of surgeons, may have details as to if they are specialists or not)
Oh my goodness thank you so much for this, it's really helpful. I really appreciate it!! No he just done the lap & didn't remove anything. He was just a regular gyny, the lap was the last option of diagnosis because the tests before didn't really show much.
 
  • Like
Reactions: 1