I have always found that keeping a written record of every symptom, disruption to every day life really helps and handing it to the doctor helps. The only word of caution I would mention is that I’ve had 3 laparoscopies and each time, my symptoms have returned worse than everI have my third gynaecologist appointment of this year in a couple of weeks with a female gynae
(after my previous male gynae laughed at me and argued with me and said I shouldn’t be concerned about endo as I now take the mini pill and don’t have a break).
I am going to demand a laparoscopy and will not leave the room until this gynae takes me seriously and arranges one. Does anyone have any tips on keeping their anger and emotions under control at an appointment. I’m usually so calm and chilled but I’m starting to lose patience.
I have every symptom of Endo which has lead to major anxiety and depression. Not to mention what feels like years of my life wasted after taking so much time off from school, college, work, so many plans and holidays I’ve cancelled due to unbearable periods, vomiting and pain.
Can’t afford to go private, almost at breaking point
HeyHi all.. I’m wondering if anyone has had adhesions diagnosed via a pelvic mri scan and what they did for it? I’ve been told I have many adhesions, and I’m so nervous about how this is going to effect my fertility. Thanks in advance xx
Did you go private for your MRI or how did you get one ?Hey
I had an MRI a few years ago which indicated endo on my pelvis and posterior cul-de-sac (area between rectum and uterus). I was referred to an endometriosis specialist (very important) who specialised in excision surgery (again, v important). Excision is the gold standard to remove endo, not ablation which can cause more problems than solve.
I had a lap (to formally diagnose) and excision (to remove) at the same time last summer with the specialist. I have been pain free since. None of it was on my reproductive organs. The plan post surgery was to stay on Depo Provera to try and stall regrowth as sadly endo will always grow back. Staying on Depo, I could have up to 11 years pain free. If I come off, up to 8 years pain free. I will likely come off at some point to try and get pregnant and then go straight back on it after having a baby.
It is so important to get in with an Endo specialist as they are trained on a whole other level on how to spot endo and remove it compared to regular gynes who can make things worse.
Any questions let me know xx
I am in Canada. I did not go private. I told my Dr I wanted an MRI and she requested one for me.Did you go private for your MRI or how did you get one ?
Glad u got the help you needed. My symptoms arent as severe as others on here but i do have pelvic pain every day and a few other things going on down below. Id be interested to see what an MRI would show. I think id be too scared to get surgery. Im nearly 40 and probably wont be having any children so having surgery to conceive wouldnt really be needed. Would just like to see if my daily pain could be eased.I am in Canada. I did not go private. I told my Dr I wanted an MRI and she requested one for me.
Are you in the UK? I am from there and know healthcare is...not the best. If you are able to go private for one, I would as you will get in quicker. If not, you will likely have to be really pushy with your doctor as they seem to hate doing testing there. Well, that was my experience with them anyway. Never realised how bad the NHS was until I moved away and didn't have to beg for tests.
Shouldn't be. I've had a good few ultrasounds done while bleeding.I’ve got my ultrasound follow up after my lap however I will be on my period. Will that be an issue?
same here! I just told them before that I was, but it didn't affect the results / what they see etcShouldn't be. I've had a good few ultrasounds done while bleeding.
Shouldn't be. I've had a good few ultrasounds done while bleeding.
same here! I just told them before that I was, but it didn't affect the results / what they see etc
Thank you - I thought so! The battle continues@queenamber hi there. Endo can only be definitively diagnosed by a lap! Adenomyosis and cysts tend to show up on MRI and sometimes Endo adhesions can be seen but it’s not enough to rule it out.
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