Endometriosis & Adenomyosis discussion thread

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I w
i would guess its more of the question of the aethestic (can’t spell that!) to knock you out rather than the procedure itself. I was told (bmi of 30) that I’m at slightly higher risk than the “normal” (ugh) BMI relevant to me…
Yeah I was thinking about that too! I’ve got myself a bit worked up about it tbh and cross with myself for not having lost much weight.

My BMI quite a bit higher than yours too (not sure exact number but over 40)
 
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Can anyone recommend anything stronger painkiller wise from my doc? I’m on holiday and should be on the beach currently lay in bed in tears in absolute agony (came on yesterday). I take paracetamol, up to 8 x 30mg codeine per day, and 500mg naproxen. None of it is working. I’ve taken about 10 codeine already today 😢
 
Can anyone recommend anything stronger painkiller wise from my doc? I’m on holiday and should be on the beach currently lay in bed in tears in absolute agony (came on yesterday). I take paracetamol, up to 8 x 30mg codeine per day, and 500mg naproxen. None of it is working. I’ve taken about 10 codeine already today 😢
Mefenamic acid (Ponstan) worked for me....
that's a helluva lot of codeine to be taking, you'll be terribly constipated and codeine is not always best for painful periods and if you have endometriosis , constipation can make symptoms worse
you might also try heat pads which adhere to your skin
 
Can anyone recommend anything stronger painkiller wise from my doc? I’m on holiday and should be on the beach currently lay in bed in tears in absolute agony (came on yesterday). I take paracetamol, up to 8 x 30mg codeine per day, and 500mg naproxen. None of it is working. I’ve taken about 10 codeine already today 😢
Oh I really do feel for you. I take all of the above, and once it no longer helped at the worst times then my GP prescribed me Shortec, which contains Oxycodone so is stronger than codeine. I only take it at the very worst times but it is the only medication I’ve tried so far which knocks the pain on the head when it’s at labour contractions type of level. Obv I don’t also take codeine with this!
I also use a TENS machine which helps, if you use it early enough when the pain starts, in conjunction with medication.
Sending you a big hug, the pain is bad enough but on holiday when you should be relaxing, it’s even worse.
 
Mefenamic acid (Ponstan) worked for me....
that's a helluva lot of codeine to be taking, you'll be terribly constipated and codeine is not always best for painful periods and if you have endometriosis , constipation can make symptoms worse
you might also try heat pads which adhere to your skin
Thank you I’ll ask about that xx I know I’ve been on it for 5 years now to help with other stomach issues I have and stop me 💩 a million times a day 😐 x
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Oh I really do feel for you. I take all of the above, and once it no longer helped at the worst times then my GP prescribed me Shortec, which contains Oxycodone so is stronger than codeine. I only take it at the very worst times but it is the only medication I’ve tried so far which knocks the pain on the head when it’s at labour contractions type of level. Obv I don’t also take codeine with this!
I also use a TENS machine which helps, if you use it early enough when the pain starts, in conjunction with medication.
Sending you a big hug, the pain is bad enough but on holiday when you should be relaxing, it’s even worse.
Thank you I’ll defo ask about that. Rubbish isn’t it, I’m tanorexic so leaving the sunshine early it must be bad lol. I’ve seen online a few people use TENS machines, going to order one xx
 
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My IVF doctor is a endometriosis specialist he recommended me magnesium, I’ve been taking the JS health one and noticed a massive improvement in pain around period time used to get really bad restless leg the day before I was due on as well and that’s stopped too.
 
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Hi everyone, I posted a while back that I was due surgery to remove an endometrioma from within my caesarean scar tissue.
That was 8 weeks ago now, they managed to get it all out, despite saying it was a ‘large area’ (no tit Sherlock, that’s what I’ve been telling you all 🙄) and put a mirena coil in at the same time.
Recovery was slow, almost like having another caesarean! Waking up the next morning wasn’t pleasant, I had swollen to the size of the michelin man, and couldn’t walk.
Pain does seem to have decreased, but I do still get the odd pain in the area that is reminiscent of the pain I had when the endometrioma was in situ. Which does worry me a little bit ☹
I’m struggling though with the remaining swelling around my middle. I’m not sure if it’s the coil, or still recovering from the surgery, or I’ve just got fat (maybe all three!). But I was wondering if anyone could share if they were bloated after surgery, and did it ever go down?!
It’s really getting me down, I do have history of ED, and body dysmorphia. Thank you for reading 😊
 
Hi everyone, I posted a while back that I was due surgery to remove an endometrioma from within my caesarean scar tissue.
That was 8 weeks ago now, they managed to get it all out, despite saying it was a ‘large area’ (no tit Sherlock, that’s what I’ve been telling you all 🙄) and put a mirena coil in at the same time.
Recovery was slow, almost like having another caesarean! Waking up the next morning wasn’t pleasant, I had swollen to the size of the michelin man, and couldn’t walk.
Pain does seem to have decreased, but I do still get the odd pain in the area that is reminiscent of the pain I had when the endometrioma was in situ. Which does worry me a little bit ☹
I’m struggling though with the remaining swelling around my middle. I’m not sure if it’s the coil, or still recovering from the surgery, or I’ve just got fat (maybe all three!). But I was wondering if anyone could share if they were bloated after surgery, and did it ever go down?!
It’s really getting me down, I do have history of ED, and body dysmorphia. Thank you for reading 😊
I remember being really bloated after laparoscopy, I was super skinny at the time and my belly was like a football but I don’t really remember for how long. Maybe a castor oil pack could help?
 
I remember being really bloated after laparoscopy, I was super skinny at the time and my belly was like a football but I don’t really remember for how long. Maybe a castor oil pack could help?
Thank you for your reply. It’s really taken me aback how bloated/swollen I am. Terrible timing with better weather. It has gone down a bit, but I can feel I still have quite a bit of internal bruising and swelling. Similar to you, I’m slim, so can really feel the difference! Thank you for the recommendation of a castor oil pack, I will look into this 👍🏻
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8 weeks is early, try not to put too much pressure on yourself
Thank you, I’m trying not to. I just feel very low about myself. I know I’m not fully recovered, so I can blame a bit of how I’m feeling and looking on that. Bloody hell, I feel like my body looks like it’s had a baby again!
Thank you for your kind words, I do appreciate it 🥰
 
I haven’t written here before but just wanted to join in.

basically I had my first baby 25 months ago, emergency c section after a failed induction. I lost 1.6 litres of blood during the section and I could hear the doctor panicking behind the curtain when suctioning all my blood up.

(before having my baby, I had perfect periods. 5 days of light bleeding, would ovulate on cycle day 15 every single month. And no pain. Had my baby aged 33)

since the c section, my periods took 9 months to come back and the first one I had I was soaking pads every hour, blood clots the size of a fist and so painful. GP told me it’s normal etc etc.

then I had no more periods for a further 3 months. Then when I did again, same again. Very very heavy, massive clots. This time doctor just kept giving me boxes of Tranexamic acid - which didn’t work!

I then had 2 mirena coils put in to help, but both coils expelled themselves after a couple of weeks due to such heavy bleeding.

finslly went to A&E and was admitted after I had been bleeding for 4 weeks very heavy red blood. They did an mri scan which showed my uterus was full of scar tissue and adenomyosis (very likely from the c section as I stressed hard that I had ZERO issues before this).

I had a D&C where my lining was cut back all the way. 9 days after the D&C I started bleeding again. Heavy. It stopped after 11 days.

GP won’t help. Gynae team at the hospital have just washed their hands of me stating that the D&C should have sorted me out and can’t fit me in for an appointment until October. I’ve got no help with my son and I am a lone parent so I cannot just keep going to A&E.

so fed up. No one is helping me or telling me anything.
 
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