Disgmosed at 23 and received no support. I was advised to get help from social services if I needed it. Apparently, having problems with noise / roads and needing more than 30 minutes notice for something that they could have arranged weeks ago, makes me "awkward". They refused to have anything to do with me after that.
- Notice
Thank you. I did used to attend a local group but it was too noisy due to the amount of people there.Hi Melianso sorry to hear about your experience with trying to access support
Have you tried community groups or anything else to help? It’s mad how it’s purely a diagnostic pathway.
I’m personally apprehensive about groups because the girl who put me on to diagnosis said the local ones were very male-oriented. I did a virtual NHS course (that was the only aftercare I had) and it was annoying more than anything. Just people I had nothing in common with going on and on. I got frustrated at the facilitators for not running it better and spent most of the time on mute like this
I enjoy your posts on here and it’s nice to hear of someone with the condition
no-no
VIP Member
Hi Melian
so sorry to hear about your experience with trying to access support Have you tried community groups or anything else to help? It’s mad how it’s purely a diagnostic pathway.I’m personally apprehensive about groups because the girl who put me on to diagnosis said the local ones were very male-oriented. I did a virtual NHS course (that was the only aftercare I had) and it was annoying more than anything. Just people I had nothing in common with going on and on. I got frustrated at the facilitators for not running it better and spent most of the time on mute like this
I enjoy your posts on here and it’s nice to hear of someone with the condition
no-no
VIP Member
Couldn’t find a thread on this so thought I’d make one for any other people diagnosed with this just to share their stories/resources/have a chat. I wanted to keep the focus on adults rather than parents of kids with ASD.
I was diagnosed when I was 31. I waited almost three years for my diagnosis and had an 8-week course afterwards, but no other support. Never had I imagined I’d have autism, I was always told it was anxiety/depression from the age of 4 (which struck me as odd). That was until I met a girl on a course I was doing who had Asperger’s and suggested I seek diagnosis. I suspect I have ADHD but they didn’t dig on that during my diagnosis, just said I had traits.
I went back to the office today and trying to keep a lid on all of the negative emotions of “neurotypical expectations” but it’s hard. It’s held me back career/relationship-wise so much. Having masked for so long (draining), I doubt I’d ever tell my employer, for example, that I have Asperger’s. I’d rather be seen as the “quiet/antisocial one”.
My experiences are compounded by toxic relationships in child and adulthood so I’m still on a path of self-parenting to become my authentic (autistic) self.
What are your experiences?
I was diagnosed when I was 31. I waited almost three years for my diagnosis and had an 8-week course afterwards, but no other support. Never had I imagined I’d have autism, I was always told it was anxiety/depression from the age of 4 (which struck me as odd). That was until I met a girl on a course I was doing who had Asperger’s and suggested I seek diagnosis. I suspect I have ADHD but they didn’t dig on that during my diagnosis, just said I had traits.
I went back to the office today and trying to keep a lid on all of the negative emotions of “neurotypical expectations” but it’s hard. It’s held me back career/relationship-wise so much. Having masked for so long (draining), I doubt I’d ever tell my employer, for example, that I have Asperger’s. I’d rather be seen as the “quiet/antisocial one”.
My experiences are compounded by toxic relationships in child and adulthood so I’m still on a path of self-parenting to become my authentic (autistic) self.
What are your experiences?
no-no
VIP Member
Really struggling with this lately at work. I hate being ‘in the closet’ but it’s not an option to disclose. I hate how people are all “let’s talk about mental health” but anyone a bit different and their faces are 
I know autism is not a MH issue, ftr. The older I get, the less I care, but it’s hard when you live in this constant state of worrying about who you are, just to exist (salary).
I know autism is not a MH issue, ftr. The older I get, the less I care, but it’s hard when you live in this constant state of worrying about who you are, just to exist (salary).
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